Head of Patient Advocacy Group Partnerships

Citizen Health

Head of Patient Advocacy Group Partnerships

Remote,
Full Time
Paid
  • Responsibilities

    Who We Are

    Citizen Health was founded on the belief - shaped by firsthand lived experiences navigating healthcare - that having the right advocate is the single most important factor in achieving better care and outcomes. By uniquely combining data, AI, and community, Citizen is building a personalized AI advocate powered by patients' complete medical histories and data from thousands of other patients to generate personalized insights for clinical decisions and day-to-day challenges. Starting in rare and complex conditions, patients share their data in exchange for value, enabling biopharma and researchers with seamless access to patients and regulatory-grade data, shaving years off drug development for much-needed treatments.

    Citizen is founded by experienced entrepreneurs with multiple successes under their belts and is funded by top-tier investors including 8VC, Transformation Capital, and Headline Ventures, among others. We are a mission-driven team excited to be building the future of consumer healthcare.

    The Role

    Patient Advocacy Groups (PAGs) are essential to our work at Citizen. They are the bridge between science and lived experience—helping us build trust, engage communities early, and ensure that the data we generate truly reflects what matters most to patients. This role focuses on driving growth of the PAG channel through strategic acquisition of high-impact PAG partnerships, with specialized focus on umbrella PAGs and pharma ecosystem integration. This role focuses on owning all PAG partnerships from acquisition through strategic account management across the rare disease ecosystem.

    Responsibilities

    PAG Partnership Acquisition & Pipeline Development

    • Lead generation, qualification, and closing of new PAG partnerships with focus on strategic therapeutic areas (Neurodevelopment, Neuromuscular, Cardiology, Renal)
    • Be able to explain Citizen offerings to PAG leaders in a compelling way, work closely with PAGs to show the benefit Citizen could provide to their patient populations and to accelerate research. Be able understand PAG needs and align on how Citizen can help drive their work
    • Build and manage sales pipeline targeting premium tier candidates and large patient communities
    • Execute conference strategy and PAG relationship building to generate qualified industry leads
    • Prioritize partnerships with existing patient cohorts for accelerated revenue realization

    Umbrella PAG Strategy & Execution

    • Lead acquisition of umbrella PAG partnerships
    • Develop multi-disease partnership strategies for organizations covering 10+ conditions.
    • Be able to differentiate a sales motion, communication and overall strategy between PAGs focused on multiple diseases versus a singular one
    • Navigate complex umbrella organization structures and decision-making processes
    • Manage partnerships that unlock 15-40 communities per relationship
    • Execute umbrella PAG consortium deals and multi-stakeholder negotiations

    Strategic PAG Account Management

    • Own relationships with top 15-20 highest-value PAGs (Premium tier candidates, established foundations)
    • Drive tier upgrades from Free → Standard → Premium through value demonstration and custom solutions
    • Manage executive-level relationships with PAG leadership, board members, and key decision makers
    • Build thought leadership through speaking engagements, industry partnerships, and advisory roles

    Pharma Ecosystem Integration

    • Build relationships with patient advocacy leads within pharma companies active in target therapeutic areas
    • Identify and pursue pharma-PAG consortium opportunities
    • Coordinate with Citizen BD team on pharma partnership strategies that leverage PAG relationships
    • Track pharma pipeline developments to inform PAG acquisition priorities
    • Develop pharma-sponsored research opportunities through PAG networks
    • Assist PAGs in preparing for pharma discussions

    Revenue Optimization

    • Drive revenue growth from existing strategic PAG accounts through expanded partnerships and service offerings
    • Manage revenue forecasting and strategic account planning for PAG portfolio
    • Identify and execute existing cohort licensing opportunities for immediate revenue acceleration

    Success Metrics

    • New strategic PAG acquisitions : 3-4 umbrella PAGs, 6-8 single disease PAGs annually
    • Community growth : 80-100 new communities annually through PAG partnerships
    • Revenue pipeline : Maintain $2-4M annual revenue pipeline from PAG partnerships
    • Pharma integration : 2-3 pharma consortium deals annually
    • Partnership efficiency : Average 8+ communities per umbrella partnership
    • Pipeline conversion : >60% conversion rate from qualified leads to partnerships
    • Strategic account growth : 25% YoY revenue growth from existing PAG accounts

    Who You Are

    You are a passionate leader, advocate and problem solver who thrives in dynamic, fast-moving environments. You approach complex problems with creativity and empathy, always keeping the needs of patients and users front and center. You are comfortable being the face of a company and mission to help inspire action. You enjoy working at the intersection of technology and healthcare and are excited about making a meaningful difference in people's lives.

    Qualifications

    • 7-10 years experience in partnerships, business development, or strategic account management
    • Healthcare/biotech industry experience , preferably with rare disease organizations and umbrella foundations
    • Track record of building relationships with non-profit executives and research institutions
    • Experience with complex B2B sales cycles and multi-stakeholder negotiations
    • Strong presentation skills and comfort with C-level executives
    • Understanding of pharma pipeline development and research consortium structures
    • Recognized public profile within disease communities

    Why Join Us?
    At Citizen Health, you will be part of an ambitious mission to build innovative AI-driven solutions that redefine the consumer healthcare experience and improve outcomes for millions. We value curiosity, creativity, and collaboration, and we believe in empowering every team member to have an impact. Here, you'll find:

    • The chance to work on pioneering AI technologies and solve complex problems that push the boundaries of what's possible in healthcare
    • The freedom to lead your projects and shape the company's direction in a mission-driven environment where your work makes a real impact
    • A fast-paced, high-growth setting that brings expanding opportunities and clear paths for career progression
    • A supportive culture of learning, experimentation, and innovation , where new ideas are encouraged and explored
    • A commitment to empathy and diversity , recognizing that our greatest strengths come from our varied perspectives and experiences
    • Regular team activities and knowledge sharing, all within a culture that prioritizes well-being and connection

    Additional Perks

    • Competitive salary + equity package
    • Comprehensive health, dental, and vision insurance
    • Unlimited paid time off including a generous parental leave
    • Flexible hybrid work environment

    Don't meet every qualification? No worries! We believe that passion, curiosity, and the right mindset are just as important as a checklist of skills. If you're excited about what we're building, we encourage you to apply.

    Our Commitment to Diversity & Inclusion

    Citizen Health is proud to be an equal opportunity employer. We celebrate diversity and are committed to creating an inclusive environment for all employees. We welcome applicants of all backgrounds, identities, and experiences. Everyone deserves an equal chance to contribute and grow here — regardless of race, gender identity, sexual orientation, religion, national origin, age, disability, or veteran status.